Dear friends,
I am reaching out to you for the first time since the launch of our new website. I must admit that I am overwhelmed with messages from friends and acquaintances I haven't seen in a long time, as well as from strangers who offer encouragement or share treatment options for Peter. From the bottom of my heart, I thank you for all the messages, comments, prayers, and financial contributions. Thank you!
Information for donors: It may happen that you do not see your contribution in the account overview yet. There is probably a display issue on the bank's side. When I have more time, I will try to call them to check it out. However, I can see your contributions in the Tatrabanka app.
Once again, thank you all from the bottom of our hearts for every contribution. We greatly appreciate that even in these times, when we are constantly bombarded with negative news, you approach supporting others with an open heart. I used to donate myself when similar stories reached me. I never thought I would find myself on the other side.
Now, a few lines about our current situation. Last Thursday, Peter had fluid drained from his cyst again. This time they managed to remove 50 ml. I waited eagerly to see the result. Peter did not feel well, but an improvement in his awareness was noticeable. He needed time to recover. Generally, Peter has a better time after his afternoon nap, in the evening. Then he is more perceptive, as if not so sedated from the morning medications.
Unfortunately, on Saturday at noon, Peter had a mild epileptic seizure. This has never happened since the surgery. In fact, it has never happened at home. It was the first time I faced it. Thank God, it wasn't severe and lasted only 2-3 minutes. After it subsided, a nurse, who fortunately was nearby at the time, measured his blood pressure and gave him a subcutaneous injection that we received from the mobile hospice doctors who now visit us regularly. I then contacted them to discuss Peter's condition. They also came to see him in person today.
As a result of this event, I feel that Peter does not have as much strength and awareness as I would expect. He sleeps more and communicates little. It is true that the hot days have arrived, and I assume that this is also why he is more apathetic.
My priority in recent days has been finding a caregiver. I admit it is really a struggle. I have been doing this for several weeks whenever I have a free moment. Unfortunately, there are very few of these people, and if they are available, they do not have time for us when we need them.
Friends, I also wanted to share some facts with you so that you know that the money we receive on our transparent account will definitely be used. Yesterday, I managed to reach a caregiving agency. Currently, they do not have anyone available for the next month or two. Despite this, I inquired about their terms.
For your information, a caregiver from their agency must be with the patient for at least 8 hours a day. The price is 9€/hour. I calculated that if a caregiver is with us 5 days a week, 4 weeks a month, I will pay 1,440€ for this service.
Peter sleeps most of the day. The caregiver would still be at our home and would need to be paid. I did not include weekends when I also have to take care of Peter. Using the caregiving service for a full 30 days, the amount comes to 2,160€.
By saying this, I want to convey two things. The first is that if I manage to find a caregiver, your financial contributions will be more than helpful and valuable. The second thing keeps puzzling me. How do people with a similar fate to ours manage without a financial collection? Such an amount is far from the family income in 95% of cases. Moreover, the family has many other regular expenses and expenses related to the treatment of the sick. A friend gave me an answer today. Those people live an undignified life.
And so, at the end of my today's post, I want to express gratitude for the fact that we have such luck in our misfortune and that thousands of people have decided to contribute and help ease our situation. Thank you!
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